The Work Clearance

Yesterday when I saw the doctor he finally agreed to let me go back to work (starting today), so long as I agreed not to put any undue stress on myself or lift/carry/move anything.  I have to keep the physical activity and exertion to a minimum, at least until I have the results from the echocardiogram back.

I had every intention of going into work this morning, but when I woke up my muscles felt tight, cramped, and weak.  I was already nervous about having to climb the subway steps because of my heart palpitations, but climbing 53 stairs with heart palpitations AND muscle soreness?  Not a good idea!  Hopefully tomorrow morning I feel better and can get back to work!  Working from home always seemed so glamorous in theory, but I quickly learned this last month that its not glamorous at all – it’s lonely, it’s boring, and quite frankly, I end up working even longer hours to compensate for the guilt of not physically being in the office.

It turned out to be a good thing that I didn’t go to work today because this afternoon I got a fairly intense bloody nose.  Since my platelets were just checked yesterday, there was no need to panic unless I couldn’t get the bleeding to stop.  Thankfully, after pinching the bridge of my nose for a few minutes, the blood stopped running down my face and, soon after, stopped completely.  If I get another bloody nose of that caliber, though, I’m going to have to call the doctor.

Today was my first day taking 50 mg of Prednisone, instead of 75 mg.  I didn’t seem to have any adverse side effects except for trouble concentrating, though tomorrow will probably be a better indication. I don’t want to jinx it, but today was my first day in weeks without a hot flash!

I called the imaging center this afternoon to make an appointment for my echo.  It turns out that the imaging center only does ultrasounds in their off-site location, which is in Jersey City Heights, and they are only open Tuesdays and Wednesdays from 9:00 AM-3:30 PM.  Tomorrow is already completely booked, so I made an appointment for next Tuesday at 12:30 PM.  I have to work from home that day anyways because I am seeing the hematologist at 3:15 PM for a platelet check.  Unfortunately, since both appointments are on the same day, I won’t have my results from the ultrasound until after I’ve already met with my doctor.  I’m sure if the echo shows anything urgent or alarming he will call me anyways.  I just have to remember to call the hematology center later this week to make sure everything is all set with my insurance.  I don’t want to get another surprise bill in the mail.

The Useless Day

So much for working from home… Today was a nightmare. The side effects of the IVIG and Prednisone were non-stop torture. I can’t even think of a time today where I was able to sit up for more than five minutes. Also, my foot cramps returned and I had a total loss of appetite. I had to force myself to eat which, in turn, only angered my belly. Around lunchtime I called my husband crying and begged him to come home from work because I didn’t feel good and I was scared to be alone. Luckily, his boss is very understanding and let him work the afternoon from home.

I don’t know what I would have done this last month if I didn’t have my husband. He has been my saving grace. Today, for instance, he came home and made sure I ate lunch, grabbed me an ice pack for my headache, stroked my hair, and repeatedly kissed my forehead. The forehead kisses this last month have been numerous and much-appreciated. Nothing makes me feel more loved than a forehead kiss.

In general, today’s main issue was the headache. I suppose a better word would be migraine. My husband hung the black-out curtains in the bedroom so I didn’t have to deal with the light making my migraine worse. He also unscrewed a few of the lightbulbs in the bathroom so it wasn’t overwhelmingly bright every time I went in there. Even so, the pain was pounding on the right side of my head and it was pounding ALL day. I sincerely hope tomorrow is better. Laying in bed all day gets old after a while. I have work to do and I have to pack for the cottage.

I read an article online about IVIG that said the side effects only last up to three days after treatment is finished. I hope that’s right because it would mean the side effects should be gone by end of day tomorrow!  I guess that is when I’ll find out how much of this is IVIG-related and how much is due to the Prednisone taper. Fingers crossed that tomorrow is a better day!